Waylon Jennings lyric: "I've always been
crazy, but it's kept me from going insane."
Penny
Marshall recently did an interview to discuss her new
book where she talks about a difficult mother, poor choices, and her
philosophy about everything which is summed up as “If it isn’t fun why do it?” She
said that the Waylon Jennings quote helps her to keep her perspective so she
keeps it in a frame on her bathroom wall.
Reading
that interview was my “Ah Ha” moment. Recently I have been struggling to find
balance due to circumstances that I have limited control over. Every day, for a couple of months now, I have
poured myself a large glass of ‘whine’ . Self-pity is not my style and I feel like I have
betrayed my own life philosophy which says that change is inevitable but how it
changes is up to me. Within seconds of
having my “Ah Ha” moment everything took on a much brighter outlook.
My sister
took my 86 year old mother for a weekend visit so I had the weekend to myself for the first
time in months. That “Ah Ha” moment
caused me to make a commitment to just enjoy the moments, one moment at a
time. Caring for someone with Alzheimer
Disease or Dementia is draining but it is also just a series of moments. No two moments are
the same. Some moments are heartbreaking, others are frustrating, and then we
have moments that make me laugh so hard that I can’t breathe. I vowed to focus on the ones that make me laugh.
When my sister brought her home, we took mom to Wal-Mart
and my sister requested a motorized cart that she could ride in. After a few
false starts, mom gripped the handlebars, hunched over with a look of
determination on her face, and took off down the aisle almost knocking over a
stack of Halloween decorations. My
sister and I looked at each other in surprise and then I took off at a quick
pace in an attempt to try and slow her down.
Mom can’t hear but refuses to wear a hearing aid (because hearing aids are for old people) so I can’t get her attention unless she actually sees me. The challenge here is that she couldn’t see me because I was running behind her. As we approach the other end of the store, she turned the cart into an aisle so quickly that I was surprised she didn’t leave skid marks on the tile. My pace has now increased to a quick trot and, as I hurry down the aisle behind her, I am offering apologies to the people who backed against the store shelves to avoid being run over. Finally, at the end of the aisle I caught up with her, but only because she paused while trying to decide which way to turn. I suggested that she slow down but she merely reminds me that her dad used to drive race cars for a hobby… he taught her…. she is a great driver … this thing turns on a dime and stops on the fly…and she hasn’t hit anyone yet…etc. I reminded her that this is not a car, or a motorcycle, pedestrians are everywhere, and this isn’t the expressway so it would be best if she went slowly. Her face took on a look of pure stubbornness as she pressed her little lips together so tight that for a moment I thought the point of her chin was going to touch the tip of her nose.
I realize that this is part of her fight to retain her independence but I felt my positive outlook slip away until my sister finally caught up to us. She took one look at mom’s face and told her that her cart knocked over some merchandise at the end of the aisle. She reminded her that if she breaks anything she may need to pay for it. Mom may have memory issues but she consistently knows exactly how much money is in her purse. Money is a great motivator where mom is concerned so she agreed to slow down.
Mom can’t hear but refuses to wear a hearing aid (because hearing aids are for old people) so I can’t get her attention unless she actually sees me. The challenge here is that she couldn’t see me because I was running behind her. As we approach the other end of the store, she turned the cart into an aisle so quickly that I was surprised she didn’t leave skid marks on the tile. My pace has now increased to a quick trot and, as I hurry down the aisle behind her, I am offering apologies to the people who backed against the store shelves to avoid being run over. Finally, at the end of the aisle I caught up with her, but only because she paused while trying to decide which way to turn. I suggested that she slow down but she merely reminds me that her dad used to drive race cars for a hobby… he taught her…. she is a great driver … this thing turns on a dime and stops on the fly…and she hasn’t hit anyone yet…etc. I reminded her that this is not a car, or a motorcycle, pedestrians are everywhere, and this isn’t the expressway so it would be best if she went slowly. Her face took on a look of pure stubbornness as she pressed her little lips together so tight that for a moment I thought the point of her chin was going to touch the tip of her nose.
I realize that this is part of her fight to retain her independence but I felt my positive outlook slip away until my sister finally caught up to us. She took one look at mom’s face and told her that her cart knocked over some merchandise at the end of the aisle. She reminded her that if she breaks anything she may need to pay for it. Mom may have memory issues but she consistently knows exactly how much money is in her purse. Money is a great motivator where mom is concerned so she agreed to slow down.
Some
people were trying to exit the aisle and, as I smile apologetically to them,
the man tells me not to worry about it. The man said to my mom “You maneuver
that very well ma-am.”
I smiled at
him as Mom asked me “What did he say?”
I didn’t
want to lie but I don’t want to encourage the little speed demon either so I lean
in and tell her “He said the cart stops on a dime.”
She only
nods and pushes the lever to accelerate. Within a few seconds we found
ourselves chasing after her again.
After the
Wal-Mart adventure, we went to a nearby restaurant for dessert. As we sat down at our table I look up to see
the family who mom nearly collided with in Wal-Mart. We said hello and I apologized again. He
laughed and said “It is OK. My wife and
I were betting how long it would take her to ‘pop a wheelie’ in that thing.”
We had an
enjoyable conversation but mom was struggling to hear. At one
point mom couldn’t hear me when I asked her what type of dessert she wanted so
I repeated it louder and louder until the waitress came over with a look that
clearly said ‘Stop yelling at that poor old woman.’ The waitress then asked her sweetly if she
would like more ice tea, then repeated it louder, and louder. Finally my mom replied loudly ‘No, I don’t
need the bathroom!” I gave the waitress
my best “I told you so” look and suggested that she just pour the tea.
Our new friends, and a few others, were trying to hold back laughter so I turned and said "Do you see that blue car over there?”
As they nod I said “That is my
car. If you go to Wal-Mart and see that car ...enter with caution. If you go in, you take the risk that Grandma is in the store cruising the
aisles. You still have options though. Target is right across the street.”
A series of moments that turn into memories is what life is all about.
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